Related Experiment Video
Updated: Jun 22, 2026

The Participant-Reported Implementation Update and Score (PRIUS): A Novel Method for Capturing Implementation-Related Data Over Time
Published on: February 19, 2021
PatientViewpoint: a website for patient-reported outcomes assessment
Claire F Snyder1, Roxanne Jensen, S Orion Courtin
1Johns Hopkins School of Medicine, Baltimore, MD 21205, USA. csnyder@jhsph.edu
A new website prototype aims to collect patient-reported outcomes (PROs) in cancer care and link them to electronic medical records (EMRs), potentially improving clinical practice and communication.
Area of Science:
- Oncology
- Health Informatics
- Patient-Reported Outcomes
Background:
- Collecting patient-reported outcomes (PROs) is crucial for comprehensive cancer care.
- Integrating PRO data with electronic medical records (EMRs) can enhance clinical decision-making.
- Existing systems may lack efficient methods for PRO data collection in outpatient oncology.
Purpose of the Study:
- To develop a prototype website for collecting patient-reported outcomes in outpatient clinical oncology.
- To establish a link between collected PRO data and the electronic medical record (EMR).
Main Methods:
- A multidisciplinary research network designed the website prototype.
- Patient (n=20) and clinician (n=7) feedback informed website specifications.
- Usability testing (n=10) assessed patient access and site interaction.
Main Results:
- Clinicians favored the website for tracking changes over time if it was not burdensome.
- Patients desired improved communication with clinicians via the website.
- Patients emphasized the need for short, simple surveys and a user-friendly interface.
Conclusions:
- A website for collecting PROs and linking them to EMRs shows promise for improving cancer care quality.
- Further pilot testing is required to evaluate the website's use, usefulness, and acceptability.
More Related Videos
06:28E-Patient Counseling Trial (E-PACO): Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
08:36The Immersive Cleveland Clinic Virtual Reality Shopping Platform for the Assessment of Instrumental Activities of Daily Living
Published on: July 28, 2022
Related Concept Videos
Patient-centered Care
Methods of Documentation II: POMR
Methods of Documentation III: PIE
Pulse Assessment Sites
Assessment of the Gastrointestinal System II: Health Perception Pattern
Health Perception Patterns
Health perception patterns offer valuable insights into a patient's lifestyle habits and how they may impact their GI health. These patterns include:
Guidelines for Writing Outcome
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care evaluation by...