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Related Experiment Video

Updated: Jun 22, 2026

A Modified Sonographic Algorithm for Image Acquisition in Life-Threatening Emergencies in the Critically Ill Newborn
11:27

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Published on: April 7, 2023

Parent-driven technology for decision support in pediatric emergency care.

Andrew M Fine1, Leslie A Kalish, Peter Forbes

  • 1Division of Emergency Medicine, Children's Hospital, Boston, USA. andrew.fine@childrens.harvard.edu

Joint Commission Journal on Quality and Patient Safety
|July 2, 2009
PubMed
Summary

Parent-driven health information technology showed a modest impact on pain documentation for children in emergency care. However, it did not significantly improve overall adherence to evidence-based guidelines across various conditions.

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Last Updated: Jun 22, 2026

A Modified Sonographic Algorithm for Image Acquisition in Life-Threatening Emergencies in the Critically Ill Newborn
11:27

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Published on: April 7, 2023

Area of Science:

  • Pediatric Emergency Medicine
  • Health Information Technology
  • Evidence-Based Practice

Background:

  • A quasi-experimental study evaluated parent-driven health information technology's impact on pediatric emergency care.
  • The study aimed to assess improvements in documentation completeness and adherence to evidence-based guidelines.

Purpose of the Study:

  • To determine if a parent-driven health information technology (ParentLink) influenced documentation and adherence to evidence-based emergency care for children.
  • To explore the potential of parent-entered data in clinical decision-making.

Main Methods:

  • Structured chart abstraction was used in pediatric and suburban emergency departments.
  • Parents of children with otitis media, UTI, head trauma, or asthma entered data into ParentLink during intervention periods.
  • ParentLink generated treatment plans based on evidence-based guidelines.

Main Results:

  • Documentation of pain significantly improved during ParentLink use (28% incomplete vs. 15%, p = .003).
  • Incorrect actions for pain treatment decreased but not significantly (33% vs. 24%, p = .13).
  • ParentLink did not significantly influence test ordering or disease-prescribing actions.

Conclusions:

  • Parent-driven health information technology showed a trend toward modest impact on pain management but lacked broad effects across diseases or care processes.
  • The study suggests parent-derived information incorporation into medical decision-making is a developing area, with ParentLink representing an early step.
  • While not a comprehensive personally controlled health record (PCHR), ParentLink highlights opportunities for patient/parent involvement in managing medical profiles.