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Evaluating preference-sensitive care for uterine fibroids: it's not so simple.
Leif I Solberg1, Stephen E Asche, Louise H Anderson
1HealthPartners, HealthPartners Medical Group, and HealthPartners Research Foundation, Minneapolis, Minnesota 55440-1524, USA. leif.i.solberg@healthpartners.com
Journal of Women'S Health (2002)
|July 8, 2009
Summary
Women with fibroids often felt their treatment decisions aligned with their values, despite knowledge gaps. Better information may improve decision-preference concordance for uterine fibroid treatments.
Area of Science:
- Medical decision-making
- Patient-centered care
- Gynecological health
Background:
- Preference-sensitive care requires informed patient choices.
- Uterine fibroids are benign with diverse treatment options.
- Evaluating decision-preference concordance is crucial.
Purpose of the Study:
- To assess the measurability of patient preferences in fibroid treatment decisions.
- To evaluate the concordance between patient preferences and chosen treatments.
- To explore the role of patient knowledge in this concordance.
Main Methods:
- Retrospective survey of 260 women with uterine fibroids.
- Survey developed via physician focus groups and patient interviews.
- Correlational analysis of preferences, knowledge, and treatment decisions.
Main Results:
- High patient desire for shared or controlled decision-making (82% response rate).
- Most patients (86%) felt informed and decisions aligned with values.
- Significant correlations found between symptom relief desires and hysterectomy use.
- Knowledge gaps existed; only 55% answered >5/7 fibroid questions correctly.
- Higher patient knowledge correlated with stronger belief in decision-preference concordance (94.9% vs. 74.4%).
Conclusions:
- Knowledge gaps were present, but association with decision-preference concordance was unclear.
- Many women with fibroids felt their treatment decisions reflected their values.
- Further research, including prospective trials, is needed to improve information and counseling for better concordance.