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Brief report: normative data on a structured interview for diabetes adherence in childhood
Adam B Lewin1, Eric A Storch, Laura B Williams
1University of South Florida School of Medicine, Rothman Center for Pediatric Neuropsychiatry, St. Petersburg, FL 33701, USA. alewin@mednet.ucla.edu
This study provides normative data for the Diabetes Self-Management Profile (DSMP) in youth with type 1 diabetes. Findings indicate lower adherence scores among older adolescents compared to younger children.
Area of Science:
- Pediatric Endocrinology
- Behavioral Medicine
- Diabetes Management
Background:
- The Diabetes Self-Management Profile (DSMP) is widely used to assess type 1 diabetes treatment adherence.
- Normative data for the DSMP, crucial for clinical interpretation, have been lacking.
- Accurate adherence assessment is vital for optimizing type 1 diabetes management in youth.
Purpose of the Study:
- To establish normative data for the DSMP, stratified by age and gender.
- To provide a benchmark for evaluating adherence in pediatric type 1 diabetes populations.
- To facilitate clinical and research applications of the DSMP.
Main Methods:
- The study involved 444 parents and 275 youth diagnosed with type 1 diabetes.
- The Diabetes Self-Management Profile (DSMP) was administered by trained clinicians.
- Data were collected for overall adherence and specific subscales (e.g., glucose monitoring, diet, exercise).
Main Results:
- Means and standard deviations for DSMP adherence scores are presented for the total sample, by gender, and by age groups.
- Normative data are provided for both child and parent ratings of adherence.
- Older adolescents reported lower adherence compared to preadolescent youth.
Conclusions:
- This study addresses the critical need for normative data in pediatric diabetes adherence research.
- The presented DSMP data offer valuable reference points for clinical assessment and research.
- These findings highlight age-related differences in self-management adherence among youth with type 1 diabetes.
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