Using EQ-5D in children with asthma, rheumatic disorders, diabetes, and speech/language and/or hearing disorders

Daniëlle C M Willems1, Manuela A Joore, Fred H M Nieman

  • 1Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht, The Netherlands. danielle.willems@epid.unimaas.nl

Insights

The EQ-5D child version shows good practicality and reliability for children with chronic conditions, especially those with stable health. However, supplementary disease-specific tools are recommended for comprehensive assessment.

Area of Science:

  • Pediatric Health Outcomes
  • Health Economics and Outcomes Research
  • Quality of Life Measurement

Background:

  • Assessing health-related quality of life (HRQoL) in children with chronic conditions is crucial.
  • The EQ-5D child version is a multi-attribute utility instrument designed for this purpose.
  • Evaluating its psychometric properties in pediatric populations is essential for valid application.

Purpose of the Study:

  • To explore the psychometric properties of the EQ-5D child version.
  • To assess its practicality, convergent validity, discriminant power, and test-retest reliability.
  • To determine its suitability for children aged 7-18 with various chronic conditions.

Main Methods:

  • A convenience sample of 182 children (aged 7-18) with asthma, rheumatic disorders, diabetes, or speech/language/hearing disorders participated.
  • The EQ-5D child version was compared with the TACQOL generic questionnaire.
  • Practicality, convergent validity, discriminant power, and 2-week test-retest reliability were evaluated.

Main Results:

  • The EQ-5D child version demonstrated good practicality.
  • Low to moderate correlations were observed between EQ-5D utilities/VAS scores and TACQOL scales.
  • Discriminant power was generally low but higher in children with rheumatic disorders; reliability was moderate to high for those with stable health.

Conclusions:

  • The EQ-5D child version appears suitable for assessing HRQoL in children, particularly those with chronic physical conditions and stable health.
  • Its reliability is promising for children with stable health status.
  • Complementary use of disease-specific questionnaires is advised for a more thorough evaluation.
Abstract

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