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Living with type 1 diabetes: perceptions of children and their parents

Marie Marshall1, Bernie Carter, Karen Rose

  • 1Saint Mary's Hospital, Manchester, UK. marie.marshall@cmmc.nhs.uk

Journal of Clinical Nursing
|August 4, 2009
PubMed

Insights

Children and parents living with type 1 diabetes mellitus strive for normalcy, finding shared experiences despite diverse backgrounds. Understanding their pursuit of

Area of Science:

  • Pediatric Endocrinology
  • Qualitative Health Research
  • Family Health

Background:

  • Type 1 diabetes mellitus (T1DM) presents significant psychological and behavioral challenges for children and parents.
  • Effective T1DM management requires daily adherence to treatment protocols to mitigate complications.
  • Limited research exists on the lived experiences of families managing T1DM in daily life.

Purpose of the Study:

  • To explore and describe the lived experiences of children and their parents managing T1DM from diagnosis.
  • To understand the meaning children and parents ascribe to living with T1DM.
  • To inform healthcare provision to better meet the needs of families affected by T1DM.

Main Methods:

  • Phenomenological study utilizing conversational interviews.
  • Purposive sampling of 10 children (aged 4-17) with T1DM and their parents.
  • Thematic analysis of interview data to identify central themes and subthemes.

Main Results:

  • The central theme identified was 'normal,' representing the pursuit of an ordinary life despite the condition.
  • Four subthemes emerged: transition, attachment, loss, and meaning, all contributing to the concept of normalcy.
  • Diabetes makes families different, intensifying their visible pursuit of normalcy.

Conclusions:

  • Families with T1DM share common experiences regardless of cultural background, age, or time since diagnosis.
  • Understanding how families create meaning around T1DM is crucial for effective healthcare.
  • Child- and parent-centered qualitative research is vital for improving nursing care and support for T1DM patients and their families.
Abstract

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