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Social issues among children with high or intermediate imperforate anus: a proxy perspective
Margret Nisell1, Wilmar Igl, Maria Ojmyr-Joelsson
1Child and Adolescent Psychiatric Unit, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden. margret.nisell@ki.se
Children with imperforate anus (IA) face psychosocial challenges. While socially competent, they receive lower academic and adaptive functioning ratings, highlighting a need for integrated care.
Area of Science:
- Pediatric Surgery
- Developmental Psychology
- Child Psychiatry
Background:
- Children with imperforate anus (IA) may experience psychosocial difficulties impacting their development.
- Understanding the psychosocial profile of children with IA is crucial for comprehensive care.
Purpose of the Study:
- To assess the psychosocial functioning of children with imperforate anus (IA).
- To compare psychosocial outcomes in children with IA to typically developing peers.
Main Methods:
- Parents completed a study-specific questionnaire and the Child Behavior Checklist (CBCL) Competence Scales.
- Teachers utilized the Teacher's Report Form (TRF) to rate academic and adaptive functioning.
Main Results:
- Favorable ratings were observed for school-related items by fathers of children with IA.
- Mothers reported less volitional expression in children with IA.
- Children with IA demonstrated social competence per CBCL, but lower ratings on TRF scales.
Conclusions:
- Psychosocial issues present challenges for children with IA.
- Attention to these psychosocial aspects is essential in the care management of children with IA.
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