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Social issues among children with high or intermediate imperforate anus: a proxy perspective
Margret Nisell1, Wilmar Igl, Maria Ojmyr-Joelsson
1Child and Adolescent Psychiatric Unit, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden. margret.nisell@ki.se
Insights
Children with imperforate anus (IA) face psychosocial challenges. While socially competent, they receive lower academic and adaptive functioning ratings, highlighting a need for integrated care.
Area of Science:
- Pediatric Surgery
- Developmental Psychology
- Child Psychiatry
Background:
- Children with imperforate anus (IA) may experience psychosocial difficulties impacting their development.
- Understanding the psychosocial profile of children with IA is crucial for comprehensive care.
Purpose of the Study:
- To assess the psychosocial functioning of children with imperforate anus (IA).
- To compare psychosocial outcomes in children with IA to typically developing peers.
Main Methods:
- Parents completed a study-specific questionnaire and the Child Behavior Checklist (CBCL) Competence Scales.
- Teachers utilized the Teacher's Report Form (TRF) to rate academic and adaptive functioning.
Main Results:
- Favorable ratings were observed for school-related items by fathers of children with IA.
- Mothers reported less volitional expression in children with IA.
- Children with IA demonstrated social competence per CBCL, but lower ratings on TRF scales.
Conclusions:
- Psychosocial issues present challenges for children with IA.
- Attention to these psychosocial aspects is essential in the care management of children with IA.
Problem:
Children with imperforate anus (IA) may be psychosocially affected.
Methods:
Parents of children with IA and parents in two comparison groups rated their children using a study-specific questionnaire and the Competence Scales in the Child Behavior Checklist (CBCL). Teachers rated Academic and Adaptive Functioning Scales in the Teacher's Report Form (TRF).
Findings:
School items were rated favorably by the fathers of children with IA, and mothers reported less expression of their children's will. Children with IA were socially competent according to CBCL, although they received lower ratings on the TRF.
Conclusions:
Psychosocial issues seem to be challenging for children with IA, and this needs attention in care management.
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