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A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program
Published on: April 19, 2019
Barriers to effective self-management in cardiac patients: the patient's experience
Holly Mead1, Ellie Andres, Christal Ramos
1The George Washington University School of Public Health and Health Services, Department of Health Policy, Washington, DC 20006, USA. khmead@gwu.edu
Insights
Disadvantaged heart disease patients face significant access barriers that worsen self-management challenges. Improving access to care is crucial for better health outcomes.
Area of Science:
- Cardiology
- Health Services Research
- Patient Self-Management
Background:
- Effective self-management is critical for patients with heart disease.
- Disadvantaged populations often face unique challenges in managing chronic conditions.
- Access barriers can significantly impede self-management efforts.
Purpose of the Study:
- To identify common obstacles to heart disease self-management.
- To explore how access barriers affect disadvantaged patients' self-management.
- To understand how to improve care for these patients.
Main Methods:
- Conducted 33 focus group discussions with heart patients across 10 U.S. communities.
- Employed content analysis to identify and categorize patient-reported barriers.
- Examined themes related to service access, daily management, and enabling supports.
Main Results:
- Identified nine major themes concerning heart condition self-management.
- Barriers were grouped into three domains: service access, daily monitoring/management, and self-management supports.
- Disadvantaged patients experience amplified self-management issues due to access obstacles.
Conclusions:
- For disadvantaged heart disease patients, access barriers significantly worsen self-management difficulties.
- Linking these patients to formal care systems, like cardiac rehabilitation, can enhance self-management skills.
- Improved access and support systems are vital for better health outcomes in disadvantaged populations.
Objective:
This paper identifies common obstacles impeding effective self-management among patients with heart disease and explores how for disadvantaged patients access barriers interfere with typical management challenges to undermine patients' efforts to care for their illnesses.
Methods:
We convened 33 focus group discussions with heart patients in 10 U.S. communities. Using content analysis, we identified and grouped the most common barriers that emerged in focus group discussions.
Results:
We identified nine major themes reflecting issues related to patients' ability to care for and manage their heart conditions. We grouped the themes into three domains of interest: (1) barriers that interfere with getting necessary services, (2) barriers that impede the monitoring and management of a heart condition on a daily basis, and (3) supports that enable self-management and improve care.
Conclusion:
For disadvantaged populations, typical problems associated with self-management of a heart condition are aggravated by substantial obstacles to accessing care.
Practice Implications:
Ensuring disadvantaged patients with chronic heart conditions are linked to formal systems of care, such as cardiac rehabilitation programs, could better develop patients' self-management skills, reduce barriers to receiving care and improve the overall health outcomes of these patients.
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