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All-around care for patients with Chagas disease: a challenge for the XXI century
1Ambulatório de Doença de Chagas e Insuficiência Cardíaca, Pronto Socorro Cardiológico de Pernambuco, Hospital Universitário Oswaldo Cruz, Universidade de Pernambuco, Recife, PE, Brasil. woliveirajr@uol.com.br
Insights
The Oswaldo Cruz Hospital
Area of Science:
- Tropical Medicine
- Cardiology
- Public Health
Background:
- Chagas disease, a parasitic infection, significantly impacts patients' biological, psychological, and social well-being.
- A biopsychosocial model of care is essential for comprehensive Chagas disease management.
- The Oswaldo Cruz Hospital established a specialized Chagas Disease and Heart Failure Outpatient Clinic in 1987.
Purpose of the Study:
- To describe the implementation and impact of a biopsychosocial model of care for Chagas disease patients.
- To highlight the role of a multidisciplinary team and patient associations in holistic care.
- To evaluate the long-term effectiveness of this integrated approach over 22 years.
Main Methods:
- Adoption of a biopsychosocial model integrating biological, psychological, and social care aspects.
- Formation of a multidisciplinary team committed to the care framework.
- Collaboration with the Pernambuco Association of Chagas Disease Patients for patient advocacy and education.
Main Results:
- The integrated care model positively impacts patient adherence to treatment.
- Improved quality of life for patients receiving comprehensive, biopsychosocial support.
- The model facilitates better-informed decisions by clinicians and policymakers.
Conclusions:
- A biopsychosocial approach, supported by multidisciplinary teams and patient associations, enhances Chagas disease care.
- Long-term application of this model improves patient outcomes and quality of life.
- This integrated healthcare strategy offers valuable insights for managing chronic diseases.
Abstract:
In 1987, the University of Pernambuco's Oswaldo Cruz Hospital in Recife, Brazil opened its Chagas Disease and Heart Failure Outpatient Clinic with the aim of providing its patients all-around care through adoption of a biopsychosocial model of care. All-around care involves caring for the patient as a whole human being in the context of the biological, psychological and social factors present, which are an inherent part of the human condition. One prerequisite for the proposed model of care is the participation of a multidisciplinary team of trained technical staff committed to this framework. Although the main focus of the service is on care, teaching and research are also an important part of its work. The Pernambuco Association of Chagas Disease Patients is guided by the same model of care and has been carrying out educational activities relating to the disease, its treatment and support for patients and family members for several years. This Association plays an important role in advocating to public authorities on behalf of patients. The accumulated experience of the past 22 years has shown us that a broad vision of health care can help clinicians and policy makers to make decisions that are more in tune with the everyday reality of the patient, which in turn has a positive impact on adherence to treatment and quality of life.
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