Related Experiment Video
Updated: Jun 20, 2026
08:13
Tail Vein Transection Bleeding Model in Fully Anesthetized Hemophilia A Mice
Published on: September 30, 2021
[Austrian haemophilia registry: up-date 2008 ]
1Clinical Division of Hematology and Hemostaseology, Department of Internal Medicine I, Medical University ofVienna, Austria.
Hamostaseologie
|September 19, 2009
Summary
The Austrian Haemophilia Registry collects essential data for improving diagnosis and therapy for haemophilia patients. Ongoing data collection will provide insights into patient characteristics and treatment methods in Austria.
Area of Science:
- Hematology
- Medical Informatics
- Public Health
Context:
- Haemophilia treatment necessitates continuous knowledge advancement in diagnosis and therapy.
- International data comparability is crucial for valid and representative data collection.
- The Austrian Haemophilia Registry was established by scientific and patient organizations.
Purpose:
- To establish a secure, web-based system for collecting comprehensive haemophilia data in Austria.
- To facilitate quality control and scientific inquiry through a structured registry design.
- To obtain informed consent for scientific data collection.
Summary:
- The Austrian Haemophilia Registry utilizes secure web-based software for data collection, initiated in early 2008.
- The registry is divided into sections for quality control and scientific research, requiring informed consent.
- Preliminary data are available, with a focus on continued data entry for future analysis.
Impact:
- Enables detailed characterization of the Austrian haemophilia patient population.
- Provides insights into current treatment modalities for haemophilia in Austria.
- Contributes to the international understanding and management of haemophilia through data sharing.
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