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Racial differences in self-reported exposure to information about hospice care
Kimberly S Johnson1, Maragatha Kuchibhatla, James A Tulsky
1Department of Medicine, Division of Geriatrics, Duke University Medical Center, Durham, NC 27710, USA. johns196@mc.duke.edu
Journal of Palliative Medicine
|October 8, 2009
Summary
African Americans report less hospice information exposure than whites, impacting their end-of-life care choices. Educational programs are crucial for informed decision-making and dispelling myths about hospice care.
Area of Science:
- Gerontology
- Public Health
- Health Disparities
Background:
- Lack of knowledge about hospice care is a known barrier to its utilization among African Americans.
- Limited data exists on racial disparities in exposure to hospice information.
Purpose of the Study:
- To investigate racial differences in self-reported exposure to hospice information.
- To determine the impact of hospice information exposure on beliefs about hospice care.
Main Methods:
- Survey of 200 community-dwelling older adults (≥65 years).
- Spearman's correlations and multivariate analyses were used to assess relationships between hospice information exposure, beliefs (Hospice Beliefs and Attitudes Scale - HBAS), and demographic/health factors.
Main Results:
- African Americans (n=105) reported significantly less hospice information exposure than whites (n=95).
- 19% of African Americans had never heard of hospice compared to 4% of whites.
- Greater hospice information exposure correlated with more favorable beliefs about hospice care.
Conclusions:
- Significant racial disparities exist in exposure to hospice information, with African Americans reporting lower levels.
- Increased exposure to hospice information is linked to more positive perceptions of hospice care.
- Targeted educational interventions are necessary for older African Americans to improve hospice knowledge and informed end-of-life care decisions.
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