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Published on: November 5, 2019
Successful Aging with Sickle Cell Disease: Using Qualitative Methods to Inform Theory
Coretta M Jenerette1, Gloria Lauderdale
1Postdoctoral Fellow at the University of North Carolina at Chapel Hill School of Nursing, 4008 Carrington Hall, Chapel Hill, NC 27599-7460. She can be contacted at coretta.jenerette@unc.edu.
Abstract:
Little is known about the lives of adults with sickle cell disease (SCD). This article reports findings from a qualitative pilot study, which used life review as a method to explore influences on health outcomes among middle-aged and older adults with SCD, Six females with SCD, recruited from two urban sickle cell clinics in the U.S., engaged in semi-structured, in-depth life review interviews. MaxQDA2 software was used for qualitative data coding and analysis. Three major themes were identified: vulnerability factors, self-care management resources, and health outcomes. These themes are consistent with the Theory of Self-Care Management for Sickle Cell Disease. Identifying vulnerability factors, self-care management resources, and health outcomes in adults with SCD may aid in developing theory-based interventions to meet health care needs of younger individuals with SCD. The life review process is a useful means to gain insight into successful aging with SCD and other chronic illnesses.
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