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Successful Aging with Sickle Cell Disease: Using Qualitative Methods to Inform Theory
Coretta M Jenerette1, Gloria Lauderdale
1Postdoctoral Fellow at the University of North Carolina at Chapel Hill School of Nursing, 4008 Carrington Hall, Chapel Hill, NC 27599-7460. She can be contacted at coretta.jenerette@unc.edu.
Journal of Theory Construction & Testing
|October 20, 2009
Summary
Adults with sickle cell disease (SCD) face unique challenges. This study explored their health outcomes using life review, identifying key vulnerability factors and self-care strategies for better aging with SCD.
Area of Science:
- Hematology
- Qualitative Research
- Gerontology
Background:
- Limited understanding of adult experiences with sickle cell disease (SCD).
- Need for insights into health outcomes and aging with chronic illness.
Purpose of the Study:
- To explore influences on health outcomes in middle-aged and older adults with SCD.
- To identify vulnerability factors and self-care management resources.
- To inform theory-based interventions for younger individuals with SCD.
Main Methods:
- Qualitative pilot study utilizing life review interviews.
- Semi-structured, in-depth interviews with six adult females with SCD.
- MaxQDA2 software for qualitative data coding and analysis.
Main Results:
- Three major themes emerged: vulnerability factors, self-care management resources, and health outcomes.
- Identified themes align with the Theory of Self-Care Management for Sickle Cell Disease.
- Life review provided insights into successful aging with SCD.
Conclusions:
- Understanding vulnerability and self-care is crucial for adults with SCD.
- Life review is a valuable method for studying chronic illness.
- Findings can guide interventions for improved health outcomes in aging with SCD.
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