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Financing newborn screening systems: US experience.

Bradford L Therrell1

  • 1Department of Pediatrics, University of Texas Health Science Center at San Antonio, San Antonio, TX, USA. therrell@uthscsa.edu

Annals of the Academy of Medicine, Singapore
|November 12, 2009
PubMed
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Newborn screening (NBS) programs in the US vary significantly by state. This review examines current financing issues and methodologies for these essential public health services.

Area of Science:

  • Public Health
  • Genetics
  • Healthcare Policy

Background:

  • Newborn screening (NBS) has been a public health initiative in the US since the 1960s.
  • NBS is mandated in all 51 US state jurisdictions, offering significant benefits by mitigating adverse outcomes of screened conditions.
  • Current NBS programs operate independently across states, leading to variations in policies, infrastructure, procedures, and services.

Purpose of the Study:

  • To review current financing issues within US newborn screening programs.
  • To examine the diverse methodologies employed for funding NBS services across different states.

Main Methods:

  • Review of existing literature and surveys on NBS financing.
  • Analysis of state-specific NBS program costs and funding streams.

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Main Results:

  • US NBS programs lack a unified national policy, resulting in 51 distinct state-level systems.
  • Financing methods for NBS programs vary considerably among states.
  • Surveys indicate a growing reliance on fees to cover screening tests and short-term follow-up.

Conclusions:

  • The decentralized nature of US NBS programs contributes to variations in financing.
  • Understanding current financing issues and methodologies is crucial for the sustainability and equity of NBS.
  • Further examination of NBS funding models is needed to ensure comprehensive and consistent public health benefits.