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The Prostate Care Questionnaire for Carers (PCQ-C): reliability, validity and acceptability.

Paul Sinfield¹, Richard Baker, Carolyn Tarrant

¹Department of Health Sciences, University of Leicester, Leicester, UK. pks4@le.ac.uk

BMC Health Services Research

|December 17, 2009

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The Prostate Cancer Questionnaire for Carers (PCQ-C) is a reliable and valid tool for assessing the needs of carers of men with prostate cancer. This questionnaire is ready for use in improving prostate cancer care quality.

Area of Science:

Oncology
Health Services Research
Patient Experience Measurement

Background:

Patient experience is routinely monitored, but carer experience is often overlooked despite its significance.
Carer needs must be addressed to enable them to fulfill their supportive role effectively.
This study evaluates the Prostate Cancer Questionnaire for Carers (PCQ-C), a new instrument for measuring carer experiences in prostate cancer care.

Purpose of the Study:

To evaluate the reliability, validity, and acceptability of the newly developed PCQ-C.
To establish the PCQ-C as a tool for assessing and improving prostate cancer care for carers.
To provide a validated instrument for research and quality improvement initiatives.

Main Methods:

A postal survey was distributed to 1087 carers of men with prostate cancer.

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Test-retest reliability was assessed by re-administering the PCQ-C to 210 carers.

Qualitative interviews with nine carers and feedback from four hospitals evaluated validity and acceptability.

Main Results:

A response rate of 47.3% (514 carers) was achieved with minimal missing data.
The PCQ-C demonstrated high internal consistency (Cronbach's alpha 0.80-0.89) and moderate to high test-retest stability (ICC 0.52-0.83).
Carer interviews and hospital feedback confirmed the PCQ-C's validity, acceptability, and usefulness for quality improvement.

Conclusions:

The PCQ-C is a validated and acceptable instrument for measuring the experiences of carers of men with prostate cancer.
The PCQ-C is ready for implementation in clinical settings for quality improvement and research.
Utilizing the PCQ-C can help address unmet needs and enhance the quality of prostate cancer care for both patients and their carers.