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Updated: Jun 17, 2026
06:28
E-Patient Counseling Trial (E-PACO): Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
Patients' experiences with navigation for cancer care.
Jennifer K Carroll1, Sharon G Humiston, Sean C Meldrum
1University of Rochester, Department of Family Medicine, United States. jennifer_carroll@urmc.rochester.edu
Patient Education and Counseling
|December 17, 2009
Summary
Patient navigation services are highly valued by cancer patients, offering crucial emotional support and practical assistance. These services improve the quality of cancer care by addressing unmet needs and coordinating complex treatment journeys.
Area of Science:
- Oncology
- Health Services Research
- Patient Care
Background:
- Cancer care navigation is defined as assessing and alleviating barriers to adequate healthcare.
- Understanding patient perspectives on care quality is crucial for improving cancer treatment experiences.
Purpose of the Study:
- To examine how patient navigation influences patients' perceptions of their cancer care quality.
- To identify valued aspects of navigation and unmet needs in cancer care.
Main Methods:
- Post-study patient interviews were conducted with 35 newly diagnosed breast and colorectal cancer patients.
- A randomized controlled trial compared usual care with patient navigation services.
- Interviews explored patient expectations and experiences with navigation or other support systems.
Main Results:
- Valued navigation aspects included emotional support, information assistance, problem-solving, and logistical coordination.
- Patients receiving usual care reported unmet needs in childcare, household help, care coordination, and emotional support.
- Instrumental benefits were highly anticipated by both navigated and non-navigated patients.
Conclusions:
- Cancer patients significantly value navigation services for their instrumental and emotional support.
- Navigation addresses fragmented and uncoordinated care, potentially improving patient-centered cancer care outcomes.
- Addressing logistical, informational, and emotional needs enhances the overall quality of cancer care from the patient's perspective.
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