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Updated: Jun 17, 2026

Eye-Tracking Control to Assess Cognitive Functions in Patients with Amyotrophic Lateral Sclerosis
Published on: October 13, 2016
Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time
A G Olsson1, I Markhede, S Strang
1Department of Neurology, Institute of Clinical Neuroscience, Sahlgrenska University Hospital, Göteborg, Sweden. anneli.g.olsson@vgregion.se <anneli.g.olsson@vgregion.se>
Objectives:
The well-being and physical function among patients with ALS and their next of kin was studied over time.
Materials And Methods:
Thirty-five patients with ALS and their next of kin were studied with respect to physical, general and psychological well-being by the visual analogue scale (VAS) every 4-6 months. Physical function in patients was rated by the ALSFRS-R and the Norris scale. Patients and next of kin rated the well-being of themselves and their counterpart.
Results:
The well-being was stable and there was a relation between the well-being of patients and next of kin throughout the time studied. Next of kin rated the well-being of the patients worse than patients rated themselves, while patients rated the well-being of their next of kin at the same level as their counterpart.
Conclusions:
The basic state of well-being as well as the interaction between patient and next of kin seem to be factors that influence the well-being of both patients and their next of kin.
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