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Paediatric pandemic planning: children's perspectives and recommendations
Donna Koller1, David Nicholas, Robin Gearing
1Early Childhood Education, Ryerson University, 350 Victoria Street, Toronto, Ontario, Canada. dkoller@ryerson.ca
Insights
Children hospitalized during the SARS outbreak shared valuable insights for future pandemic planning. Their recommendations focus on psychosocial care, infection control, and communication, emphasizing the need for youth participation in healthcare decisions.
Area of Science:
- Pediatric Healthcare
- Public Health
- Child Psychology
Background:
- Children are key stakeholders in pediatric hospitals but are often excluded from healthcare discussions.
- Pandemic planning historically overlooks the unique perspectives and needs of hospitalized children.
- The Severe Acute Respiratory Syndrome (SARS) outbreaks in 2003 highlighted gaps in involving children in health crisis management.
Purpose of the Study:
- To examine the experiences and recommendations of children hospitalized during the SARS outbreaks.
- To gather insights from pediatric patients to inform future pandemic preparedness strategies.
- To advocate for increased youth participation in healthcare decision-making and pandemic planning.
Main Methods:
- Qualitative study involving interviews with 21 child and adolescent participants hospitalized during SARS.
- Data collected from patients across various medical units including cardiac, critical care, organ transplant, respiratory medicine, and infectious diseases.
- Analysis guided by child development theories and children's rights literature.
Main Results:
- Identified a range of children's experiences during the SARS outbreaks.
- Generated specific recommendations for future pandemic planning from a child's perspective.
- Key recommendations included enhancing psychosocial support, refining infection control measures, improving communication strategies, and optimizing resource management.
Conclusions:
- Children's perspectives are crucial for effective pandemic planning and healthcare policy development.
- There is a need for greater inclusion of youth in healthcare decision-making processes.
- Implementing children's recommendations can improve pediatric care during health crises and future pandemics.
Abstract:
Children, as major stakeholders in paediatric hospitals, have remained absent from discussions on important healthcare issues. One critical area where children's voices have been minimised is in the planning for future pandemics. This paper presents a subset of data from a programme of research which examined various stakeholder experiences of the severe acute respiratory syndrome (SARS) outbreaks of 2003. These data also generated recommendations for future pandemic planning. Specifically, this paper will examine the perspectives and recommendations of children hospitalised during SARS in a large paediatric hospital in Canada. Twenty-one (n = 21) child and adolescent participants were interviewed from a variety of medical areas including cardiac (n = 2), critical care (n = 2), organ transplant (n = 4), respiratory medicine (n = 8) and infectious diseases (patients diagnosed with suspected or probable SARS; n = 5). Data analyses exposed a range of children's experiences associated with the outbreaks as well as recommendations for future pandemic planning. Key recommendations included specific policies and guidelines concerning psychosocial care, infection control, communication strategies and the management of various resources. This paper is guided by a conceptual framework comprised of theories from child development and literature on children's rights. The authors call for greater youth participation in healthcare decision-making and pandemic planning.
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