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Published on: February 2, 2017

Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey

Debra E Irwin1, Brian D Stucky, David Thissen

  • 1Department of Epidemiology, University of North Carolina at Chapel Hill, CB #7294, Chapel Hill, NC 27599, USA. dirwin@email.unc.edu

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
|March 6, 2010
PubMed

Insights

This study evaluated the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric items for measuring health in children. The PROMIS pediatric item banks provide a robust tool for assessing various health domains in diverse pediatric populations.

Area of Science:

  • Pediatric Health Measurement
  • Health Outcomes Research
  • Psychometrics

Background:

  • Patient-reported outcomes are crucial for assessing pediatric health.
  • Existing measures may not adequately capture the experiences of diverse child populations.
  • The Patient-Reported Outcomes Measurement Information System (PROMIS) aims to standardize health outcome measurement.

Purpose of the Study:

  • To evaluate the measurement characteristics of PROMIS pediatric items.
  • To establish psychometrically sound item banks for pediatric health assessment.
  • To assess the utility of PROMIS in a large, diverse pediatric sample.

Main Methods:

  • Large-scale administration of PROMIS pediatric items to children aged 8-17.
  • Children completed test forms including PROMIS items across six domains: physical function, emotional distress, social role relationship, fatigue, pain, and asthma.
  • Data collected from 4,129 children between January 2007 and May 2008.

Main Results:

  • The study enrolled 4,129 children (51% female, 55% aged 8-12, 42% minority race, 17% Hispanic).
  • Approximately 35% of children had consulted a clinician for a chronic illness within six months prior to enrollment.
  • PROMIS items demonstrated suitability for measuring various health domains in this pediatric cohort.

Conclusions:

  • Final PROMIS pediatric item banks were developed for physical function (52 items), emotional distress (35 items), social role relationships (15 items), fatigue (34 items), pain (13 items), and asthma (17 items).
  • Initial calibration data from a diverse pediatric population with varying health states and backgrounds support the generalizability of PROMIS measures.
  • These item banks provide a foundation for reliable and valid pediatric health outcome assessment.
Abstract

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