Community-based participatory research in Little Haiti: challenges and lessons learned
Erin Kobetz1, Janelle Menard, Joshua Diem
1Department of Epidemiology and Public Health, University of Miami Miller School of Medicine, USA.
Background:
Community-based participatory research (CBPR) is an effective methodology for developing relevant interventions with socially marginalized communities. However, implementing CBPR methods is challenging for several reasons. This paper presents challenges encountered in the context of an ongoing CBPR initiative in Little Haiti in Miami, Florida, and describes the solutions used to address them.
Objectives:
We sought to describe the challenges faced and lessons learned while conducting CBPR in Little Haiti.
Methods:
Community-academic partnerships were created to guide the creation of culturally relevant cancer interventions and research.
Lessons Learned:
Historical distrust of research, cultural constructions of health and illness, and literacy issues are key considerations when developing partnerships with Haitian and other marginalized, immigrant communities.
Conclusions:
Partnerships are fostered over time through demonstrated mutual commitment to improving health and building community capacity. Communities must play an active role throughout the research process to ensure that studies are culturally relevant, and ensuing intervention, sustainable.
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