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The reliability of cause-of-death coding in The Netherlands
Peter Harteloh1, Kim de Bruin, Jan Kardaun
1Statistics Netherlands, POB 24 500, 2490 HA, The Hague, The Netherlands. ppm.harteloh@cbs.nl
Cause-of-death statistics reliability in the Netherlands was assessed. While reliable for major causes like cancer, chronic diseases showed low reliability, necessitating caution in interpretation and improved coding guidelines.
Area of Science:
- Public Health
- Epidemiology
- Medical Statistics
Background:
- Cause-of-death statistics are crucial for epidemiological research and policy.
- Understanding the reliability of these statistics is vital for accurate trend interpretation and population comparisons.
- Coding variations can obscure true differences in health determinants.
Purpose of the Study:
- To evaluate the reliability of cause-of-death statistics in The Netherlands.
- To assess both intercoder and intracoder agreement in assigning underlying causes of death.
Main Methods:
- A double coding study was conducted on 10,833 death certificates from May 2005, re-coded in 2007.
- Four coders manually assigned codes to each death certificate.
- Reliability was measured using intercoder agreement and intracoder consistency.
Main Results:
- Overall intercoder agreement for the underlying cause of death was 78%.
- Mean intracoder agreement was 89%, with 2.2% of cases showing code changes upon re-coding.
- Reliability was high (>90%) for major causes (e.g., cancers, myocardial infarction) but low (<70%) for chronic diseases (e.g., diabetes, renal insufficiency).
- Agreement varied with ICD-10 code specificity, age, number of coders, and reported diseases.
Conclusions:
- The reliability of cause-of-death statistics in The Netherlands is variable, being high for some causes and low for others.
- Statistical offices should develop and regularly evaluate specific coding rules for low-reliability diseases.
- Users must exercise caution when interpreting cause-of-death data, especially for chronic conditions.
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