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Newborn screening follow-up within the lifespan context: Michigan's experience
Violanda Grigorescu1, Mary J Kleyn, Steven J Korzeniewski
1Division of Genomics, Perinatal Health and Chronic Disease Epidemiology, Michigan Department of Community Health, Lansing, MI 48909, USA. GrigorescuV@michigan.gov
American Journal of Preventive Medicine
|March 25, 2010
Summary
A proposed model for sickle cell disease surveillance across the lifespan can improve newborn screening follow-up. This approach aids in evaluating disease burden and informing public health policy for various genetic disorders.
Area of Science:
- Public Health
- Genetics
- Medical Surveillance
Background:
- Newborn screening follow-up requires integration with diverse services beyond clinical subspecialties.
- Existing knowledge on newborn screening follow-up needs enhancement for comprehensive care.
- Sickle cell disease surveillance is crucial for understanding its lifelong impact.
Purpose of the Study:
- To present a model for statewide sickle cell disease surveillance across the lifespan.
- To evaluate the burden of sickle cell disease throughout all life stages.
- To establish a framework applicable to other hemoglobinopathies and newborn screening disorders.
Main Methods:
- Utilizing state resources for developing a comprehensive surveillance system.
- Integrating various data sources for robust surveillance system development.
- Continuous assessment and monitoring of key health indicators.
Main Results:
- The proposed model facilitates lifespan surveillance for sickle cell disease.
- The model can be adapted for other genetic disorders and hemoglobinopathies.
- Data collected informs public health policy and improves screening follow-up.
Conclusions:
- Lifespan surveillance for sickle cell disease is feasible and beneficial.
- This model enhances newborn screening follow-up programs.
- Effective surveillance informs public health policy for genetic disorders.
