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A European survey on biobanks: trends and issues
1European Commission, Joint Research Centre, Institute for Prospective Technological Studies, Seville, Spain.
European biobanks are crucial for research but show limited networking and harmonization. A survey revealed significant practice variability, hindering cross-border collaboration and sample/data access for personalized medicine.
Area of Science:
- Biomedical research infrastructure
- Personalized medicine
- Biobanking
Background:
- Biobanks are vital infrastructures for research and personalized medicine.
- Varied biobanking practices can impede cross-border research and collaboration.
- The extent of biobanking activities and networking impact requires assessment.
Purpose of the Study:
- To assess the extent of biobanking in Europe.
- To understand networking and harmonization levels among European biobanks.
- To identify barriers to cross-border research and collaboration.
Main Methods:
- Survey conducted among European biobanks.
- 126 biobanks from 23 countries responded.
- Data collected on biobank size, purpose, networking, and policies.
Main Results:
- Most biobanks are small/medium, public, and serve population-based or disease-specific research.
- Limited networking observed; many operate as stand-alone collections.
- About half have cross-border sharing policies; significant variability in consent and data protection.
Conclusions:
- Harmonization is needed to promote biobank networking and maximize public health benefits.
- Addressing practice variability can enhance cross-border research collaboration.
- Strengthening biobank networks is key for advancing personalized medicine.
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