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Related Experiment Video

Updated: Jun 13, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

Gathering information to develop palliative care programs for Alaska's Aboriginal peoples.

Christine A Decourtney¹, P Kay Branch, Karen M Morgan

¹Alaska Native Tribal Health Consortium, 4000 Ambassador Drive, Anchorage, Alaska 99504, USA. cdecourtney@anthc.org

Journal of Palliative Care

|April 21, 2010

Summary

Culturally adapted focus groups gathered vital information on traditional end-of-life care practices and needs within Alaska

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Last Updated: Jun 13, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

Area of Science:

Sociology
Public Health
Indigenous Studies

Background:

Alaska's Aboriginal communities face unique challenges in end-of-life care due to remote settings.
Standard research methods may not be culturally appropriate or effective in these communities.

Purpose of the Study:

To gather information on traditional end-of-life care practices among Alaska's Aboriginal people.
To understand current values, preferences, and support needs for caregivers.
To explore how palliative care programs can assist families in community-based end-of-life care.

Main Methods:

A qualitative research approach was employed over eight years.
Focus groups were conducted in six diverse Alaska Aboriginal communities.
The standard focus group design was culturally modified to align with community norms and communication styles.

Main Results:

Culturally modified focus groups yielded rich data on historical and traditional death care practices.
Participants shared expectations and concerns regarding their own end-of-life experiences.
The study successfully gathered valuable insights into community engagement for end-of-life care initiatives.

Conclusions:

Culturally sensitive research methods are essential for effective engagement in Indigenous communities.
Understanding traditional practices and community needs is crucial for developing appropriate palliative care services.
Community-based participatory research can yield significant findings for improving end-of-life care in remote Indigenous populations.