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The Perinatal Asphyxiated Lamb Model: A Model for Newborn Resuscitation

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Parental experience following perinatal death: exploring the issues to make progress.

M A Einaudi¹, P Le Coz, P Malzac

¹Department of Pediatrics-Neonatology, Hôpital Nord, Université de la Méditerranée, Marseille, France. marieange.einaudi@mail.ap-hm.fr

European Journal of Obstetrics, Gynecology, and Reproductive Biology

|May 1, 2010

Summary

Parents need their autonomy respected during perinatal death. Understanding parental experiences can improve caregiver practices and support the grieving process for bereaved families.

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Area of Science:

Perinatal Medicine
Bioethics
Qualitative Research

Background:

Perinatal death significantly impacts families.
Parental needs and ethical considerations are crucial in bereavement care.
Existing interventions may not fully address parental experiences.

Purpose of the Study:

To understand parental attitudes, needs, and ethical issues in perinatal death.
To inform the development of effective interventions for bereaved families.
To explore parental perspectives on caregiver practices and ethical principles.

Main Methods:

Qualitative descriptive survey using Delphi method for questionnaire development.
Semi-directed interviews and postal questionnaires for data collection.
Secondary analysis of ethical principles (beneficence, nonmaleficence, autonomy, justice) in parental experiences.

Main Results:

Half of parents felt their feelings and decisions were not respected ethically.
Parents provided feedback on beneficial and detrimental caregiver practices.
Specific themes included deaths during neonatal palliative care and multiple pregnancies.

Conclusions:

Understanding parental feelings aids caregivers in supporting the grieving process.
Parents' attitudes toward ethical decision-making were revealed.
Respecting parental autonomy in perinatal medicine presents challenges for caregivers.