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Developing an instrument to measure heart failure disease management program intensity and complexity
Barbara Riegel1, Christopher S Lee, Julie Sochalski
1University of Pennsylvania, Philadelphia, 19104-4217, USA. briegel@nursing.upenn.edu <briegel@nursing.upenn.edu>
Insights
A new scoring instrument helps standardize the description of heart failure (HF) disease management programs. The Heart Failure Disease Management Scoring Instrument (HF-DMSI) assesses program intensity and complexity, improving comparisons.
Area of Science:
- Cardiology
- Health Services Research
- Medical Informatics
Background:
- Comparing heart failure (HF) disease management programs is challenging due to variability in intensity and complexity.
- A standardized method is needed to objectively describe these programs.
Purpose of the Study:
- To develop an instrument for describing the intensity and complexity of HF disease management programs.
Main Methods:
- Adapted criteria from the American Heart Association (AHA) taxonomy of disease management.
- Developed the Heart Failure Disease Management Scoring Instrument (HF-DMSI) covering 6 domains.
- Used hierarchical scoring and an ordinal system to rate intensity and complexity.
- Assessed content validity against the AHA taxonomy and inter-rater reliability.
Main Results:
- The HF-DMSI incorporates key domains: recipient, intervention content, delivery personnel, communication method, intensity/complexity, and environment.
- Inter-rater reliability was high (ICC=0.918) after refinement.
- Delivery personnel and communication methods showed the most variability among programs.
Conclusions:
- The HF-DMSI is a valuable tool for characterizing the intensity and complexity of HF disease management programs.
- This instrument facilitates more consistent comparisons of different HF management strategies.
Background:
Comparing disease management programs and their effects is difficult because of wide variability in program intensity and complexity. The purpose of this effort was to develop an instrument that can be used to describe the intensity and complexity of heart failure (HF) disease management programs.
Methods And Results:
Specific composition criteria were taken from the American Heart Association (AHA) taxonomy of disease management and hierarchically scored to allow users to describe the intensity and complexity of the domains and subdomains of HF disease management programs. The HF Disease Management Scoring Instrument (HF-DMSI) incorporates 6 of the 8 domains from the taxonomy: recipient, intervention content, delivery personnel, method of communication, intensity/complexity, and environment. The 3 intervention content subdomains (education/counseling, medication management, and peer support) are described separately. In this first test of the HF-DMSI, overall intensity (measured as duration) and complexity were rated using an ordinal scoring system. Possible scores reflect a clinical rationale and differ by category, with zero given only if the element could potentially be missing (eg, surveillance by remote monitoring). Content validity was evident as the instrument matches the existing AHA taxonomy. After revision and refinement, 2 authors obtained an inter-rater reliability intraclass correlation coefficient score of 0.918 (confidence interval, 0.880 to 0.944, P<0.001) in their rating of 12 studies. The areas with most variability among programs were delivery personnel and method of communication.
Conclusions:
The HF-DMSI is useful for describing the intensity and complexity of HF disease management programs.
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