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Barriers and needs in paediatric palliative home care in Germany: a qualitative interview study with professional

Saskia Jünger1, Tania Pastrana, Martina Pestinger

  • 1Department of Palliative Medicine, RWTH Aachen University Hospital, Pauwelsstrasse 30, 52057 Aachen, Germany. saskia.juenger@web.de.

BMC Palliative Care
|June 8, 2010
PubMed

Insights

Barriers in pediatric palliative care include unclear regulations and service gaps. Addressing these challenges is crucial for improving care access and delivery for children and adolescents.

Area of Science:

  • Pediatric Palliative Care
  • Healthcare Service Delivery
  • Qualitative Research

Background:

  • Pilot project implemented in North-Rhine Westphalia, Germany, for extensive palliative care services for children and adolescents.
  • Accompanying research assessed the initial status and evaluated the pilot project's effects.
  • Explored barriers and needs in pediatric palliative home care within the region.

Purpose of the Study:

  • Assess the status quo of pediatric palliative care service delivery at the project's outset.
  • Evaluate the effects of the implemented pilot project.
  • Identify barriers and needs in pediatric palliative home care.

Main Methods:

  • Conducted semi-structured interviews with 24 experts.
  • Experts included specialists in pediatrics, palliative care, and hospice care.
  • Analyzed interview data using qualitative content analysis.

Main Results:

  • Identified four main categories: specific challenges, lack of clear legal/financial regulations, care delivery gaps, and service access.
  • Highlighted that the field is expanding, with some deficits being temporary.
  • Expert interviews indicated a need for improved regulatory frameworks and specialist services.

Conclusions:

  • Lack of clear legal and financial regulations is a predominant barrier.
  • Specific challenges of pediatric palliative care require tailored regulatory approaches.
  • Shortcomings in specialist services hinder local care provision across the federal state.
Abstract

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