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Patient-reported outcomes in stuttering treatment: conceptual framework
1Associate Professor, Department of Clinical & Administrative Pharmacy, 250 W. Green St, RC Wilson Pharmacy Building Room 254, College of Pharmacy, University of Georgia, Athens, GA 30602, USA. dfranic@rx.uga.edu.
The Overall Assessment of the Speaker's Experience of Stuttering (OASES) is a comprehensive tool for measuring stuttering impacts. However, its conceptual framework and psychometric data present challenges for researchers and clinicians.
Area of Science:
- Speech-Language Pathology
- Psychometrics
- Clinical Assessment
Background:
- Stuttering significantly impacts individuals' lives.
- A need exists for comprehensive tools to measure stuttering's effects.
- Previous frameworks often overlooked emotional and cognitive factors.
Purpose of the Study:
- To evaluate the Overall Assessment of the Speaker's Experience of Stuttering (OASES) instrument.
- To assess OASES's utility in documenting outcomes of stuttering treatment.
- To analyze the conceptual and psychometric properties of OASES.
Main Methods:
- The study involved an evaluation of the OASES, a 100-item self-report questionnaire.
- OASES assesses general information, reactions to stuttering, communication in daily situations, and quality of life.
- The conceptual framework draws from historical views, ICIDH, and ICF.
Main Results:
- OASES is presented as the first complete instrument for measuring stuttering impact in adults.
- The instrument covers multiple domains including psychological and functional aspects.
- Limitations were identified in the conceptual framework and psychometric data.
Conclusions:
- The OASES instrument offers a broad assessment of the speaker's experience of stuttering.
- Clinicians and researchers should be aware of the identified issues with OASES's framework and data.
- The evaluation provides insights relevant beyond stuttering research.
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