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The Madison Clinic: Evaluation of a collaborative outpatient paediatric palliative care clinic
Harold Siden1, Lynn Straatman, Tanice Miller
1University of British Columbia, British Columbia. hsiden@cw.bc.ca
Insights
A new pediatric palliative care clinic enhances continuity of care for children with life-limiting conditions. The multidisciplinary clinic offers symptom management and hospice program introduction, improving patient and family satisfaction.
Area of Science:
- Pediatric Palliative Care
- Outpatient Services
- Life-Limiting Conditions
Background:
- Established a multidisciplinary outpatient clinic at a tertiary children's hospital, integrated with a children's hospice.
- Clinic developed collaboratively with clinicians, program leaders, and families to meet specific needs.
Purpose of the Study:
- To enhance and expand existing inpatient palliative care services through an outpatient model.
- To provide continuous care and support for pediatric patients with life-limiting conditions and their families.
Main Methods:
- Clinic evaluated using prospective collection of program data, focusing on palliative care consultations.
- Data analysis included tracking patient visits, reasons for consultation, and patient satisfaction.
Main Results:
- Over 29 months, 43 clinics were held, serving 39 unique patients with 59 visits.
- Primary reasons for visits included pain/symptom management (75%) and hospice program assessment (20%).
- Patients reported high overall satisfaction with clinic services, including telephone and videoconference support.
Conclusions:
- The outpatient clinic provides crucial continuity of care for pediatric patients and their families.
- It serves as an accessible entry point to palliative care, especially for families not yet ready for full hospice services.
Background:
A multidisciplinary outpatient clinic at a tertiary care children's hospital supported and staffed by a children's hospice was created to enhance and expand the inpatient palliative care services available to families of children with life-limiting conditions. This clinic was created with input from clinicians, program leaders and families in developing the goals and format.
Method:
The clinic was evaluated with indicators that included program data from palliative care consultations. This information was collected and recorded on a prospective basis.
Results:
In the first 29 months of operation, 43 clinics were held, 39 individual patients were seen and there were 59 visits. The majority of visits were for pain and symptom management (75%), while 20% were for assessment for the hospice program. The hospice-palliative care team also provided telephone support, videoconference support and inpatient consultations. Patients reported overall satisfaction with their experiences at the clinic.
Discussion:
A major benefit of this outpatient palliative care clinic is its ability to offer continuity of care for patients and their families. It also serves as a preliminary introduction to palliative care, particularly significant for families who are not yet ready to learn about or engage in the full hospice program.
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