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Pediatric palliative care
1The University of Pennsylvania School of Medicine, Pediatric Hospice and Palliative Medicine, Division of General Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Insights
Pediatric palliative care focuses on alleviating suffering for children with serious illnesses. Understanding specific tasks and predictable suffering periods helps pediatricians improve quality of life for these children and their families.
Area of Science:
- Pediatrics
- Palliative Care
- Quality of Life Research
Background:
- Palliative care is integral to pediatric care, encompassing interventions to relieve suffering and enhance quality of life at any disease stage.
- Pediatric palliative care is best defined by specific tasks aimed at mitigating suffering, rather than patient population or disease severity.
- Predictable periods of suffering exist for children with serious illnesses, offering opportunities for targeted interventions.
Purpose of the Study:
- To define pediatric palliative care as a set of interventions focused on easing suffering in life-threatening conditions.
- To outline an approach for implementing these interventions, emphasizing pediatrician collaboration with specialists.
- To identify common and predictable times of suffering where interventions are most effective.
Main Methods:
- Literature review and synthesis of existing knowledge on pediatric palliative care.
- Definition of palliative care through specific tasks and interventions.
- Discussion of implementation strategies for pediatricians, including multidisciplinary collaboration and communication skills.
- Analysis of common scenarios, particularly the care of children with severe neurologic impairment.
Main Results:
- Palliative care is characterized by specific tasks to mitigate suffering throughout a child's illness trajectory.
- Identifying predictable times of suffering allows for timely and effective interventions.
- Pediatricians can enhance care by collaborating with specialists and utilizing communication skills.
Conclusions:
- Pediatric palliative care is a crucial component of care for children with life-threatening conditions, focusing on suffering mitigation.
- Effective implementation involves understanding specific tasks, recognizing predictable suffering, and multidisciplinary collaboration.
- This approach supports children with complex chronic conditions and severe neurologic impairment, improving their quality of life.
Abstract:
Palliative care has always been a part of the care of children. It includes any intervention that focuses on relieving suffering, slowing the progression of disease, and improving quality of life at any stage of disease. In addition, for even the child with the most unpredictable disease, there are predictable times in this child's life when the child, family, and care team will be suffering in ways that can be mitigated by specific interventions. Rather than defining pediatric palliative care in terms of a patient base, severity of disease, or even a general philosophy of care, palliative care can best be understood as a specific set of tasks directed at mitigating suffering. By understanding these tasks; learning to identify predictable times and settings of suffering; and learning to collaborate with multidisciplinary specialists, use communication skills, and identify clinical resources, the pediatrician can more effectively support children with life-threatening illnesses and their families. In this article, we define palliative care as a focus of care integrated in all phases of life and as a set of interventions aimed at easing suffering associated with life-threatening conditions. We detail an approach to these interventions and discuss how they can be implemented by the pediatrician with the support of specialists in hospice and palliative medicine. We discuss common and predictable times of suffering when these interventions become effective ways to treat suffering and improve quality of life. Finally, we discuss those situations that pediatricians most commonly and intensely interface with palliative care-the care of the child with complex, chronic conditions and severe neurologic impairment (SNI).
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