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Resilience, childhood disability and the Internet--case report
Marianne B Sutton1, Stefanie Windischbauer, Evelyne Magali St John Sutton
1mariannebsutton@gmail.com
This study highlights how internet research empowers parents of disabled children, enabling informed medical decisions and fostering a sense of control over their child's health journey.
Area of Science:
- Pediatric Medicine
- Family Studies
- Health Informatics
Background:
- Resilient families often exhibit strong relationships and communication.
- Parental involvement is crucial in managing childhood disabilities.
Observation:
- A family with a severely disabled child displayed characteristics of resilience.
- The mother actively used internet resources to inform medical decisions.
Findings:
- Internet-based parental education can foster a sense of mastery over a child's disease.
- Maternal decision-making, informed by online resources, is a significant factor.
Implications:
- Online resources can empower parents in navigating complex medical situations.
- This approach may enhance family coping mechanisms and child health outcomes.
- Further research into internet-driven medical decision-making in pediatric care is warranted.
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