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Pediatric resident attitudes toward caring for children with severe disabilities
Jeffrey D Edwards1, Emily J Davidson, Amy J Houtrow
1Division of Pediatric Critical Care, Department of Pediatrics, University of California, San Francisco, California 94143-0106, USA.
Objective:
To survey pediatric residents' attitudes toward caring for children with severe disabilities.
Design:
A cross-sectional survey of residents in a university-affiliated pediatric residency program between October and December 2005. Residents were asked to complete a newly designed, 13-item survey. For each item, participants selected the degree to which they did or did not agree with a statement about disabilities or caring for children with severe disabilities.
Results:
Fifty-five (43%) of 129 eligible residents participated. Eighty-nine percent felt that caring for children with severe disabilities was as rewarding as caring for other children. Ninety-two percent felt that there is a societal responsibility to care for such children; 98% felt families of children with disabilities love their children as much as other families. Two-thirds (66%) admitted frustration related to caring for children who cannot be cured or function independently, and 71% questioned the aggressive treatment of such children. Residents in their second and third postgraduate years were more likely to question the aggressive treatment compared with their junior colleagues.
Conclusions:
Although pediatric residents had positive attitudes toward children with severe disabilities, emotional and moral tensions did arise around their care.
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