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Using freelisting to understand shared decision making in ADHD: parents' and pediatricians' perspectives
Alexander G Fiks1, Angela Gafen, Cayce C Hughes
1The Pediatric Research Consortium, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA. fiks@email.chop.edu
Pediatricians and parents hold different views on Attention Deficit Hyperactivity Disorder (ADHD). Tailoring treatment discussions to families' diverse needs is crucial for effective shared decision-making (SDM) in pediatric ADHD care.
Area of Science:
- Pediatric primary care
- Child psychology
- Family medicine
Background:
- Shared decision-making (SDM) in pediatric care requires understanding diverse perspectives.
- Attention Deficit Hyperactivity Disorder (ADHD) management involves both clinicians and families.
Purpose of the Study:
- To compare and contrast pediatrician and parent perceptions of ADHD.
- To identify differing viewpoints influencing shared decision-making (SDM) for pediatric ADHD.
Main Methods:
- Freelisting study involving 60 parents and 30 pediatricians.
- Analysis of terms related to ADHD, help-seeking, communication, and mental health.
- Salience scores and cultural consensus analysis identified key concepts and subgroup variations.
Main Results:
- Parents focused on ADHD's impact on the child and family; clinicians emphasized school-related aspects.
- Clinicians prioritized "time," while parents sought "learning," "understanding," "comfort," and "relief."
- Neither group equated ADHD with "mental health."
Conclusions:
- Differing conceptualizations of ADHD necessitate negotiation for effective SDM.
- Tailoring treatment discussions to families' emotional and educational needs is essential.
- Recognizing ADHD as distinct from mental health supports SDM in primary care.
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