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Published on: December 18, 2016
Children's access to treatment for epilepsy: experience from the Lao People's Democratic Republic
Hubert Barennes1, Khouanheuane Sengkhamyong, Emercia M Sambany
1Francophone Institute for Tropical Medicine, Vientiane, Lao PDR. hubert.barennes@auf.org
Insights
Epilepsy in children is highly neglected in Lao PDR, with a 90% treatment gap. Addressing traditional beliefs, stigma, and poor knowledge is crucial to improve access to antiepileptic drugs (AEDs).
Area of Science:
- Neurology
- Global Health
- Pediatrics
Background:
- Epilepsy affects 10.5 million children globally, with 80% in developing nations.
- Lao People's Democratic Republic (Lao PDR) faces a significant 90% treatment gap for childhood epilepsy.
- Epilepsy is often neglected and referred to as 'mad pig disease' in Lao PDR.
Purpose of the Study:
- To analyze the reasons behind limited access to antiepileptic drugs (AEDs) for children with epilepsy in Lao PDR.
- To identify socio-cultural and systemic barriers contributing to the epilepsy treatment gap.
Main Methods:
- Qualitative analysis of factors influencing AED access.
- Exploration of traditional beliefs, knowledge, and trust in modern medicine.
Main Results:
- High prevalence of traditional beliefs, fear, and stigma surrounding epilepsy (affecting 40% of health staff).
- Poor understanding of epilepsy and its treatment among the population and health workers.
- Limited access to AEDs and lack of awareness regarding the necessity of long-term treatment.
Conclusions:
- Addressing stigma and improving knowledge of epilepsy and its treatment are essential.
- Enhancing understanding and trust in modern antiepileptic drugs can help reduce the treatment gap for children.
- Interventions should focus on education and improving healthcare access for pediatric epilepsy in Lao PDR.
Abstract:
Epilepsy affects an estimated 10.5 million children worldwide, of whom 80% live in developing countries. The treatment gap is estimated at around 90% in the Lao People's Democratic Republic (Lao PDR). The present work analyses some of the reasons that could explain the low access to antiepileptic drugs (AED) for children with epilepsy in the Lao PDR. Epilepsy, the 'mad pig disease', is highly neglected. Traditional beliefs, fear and stigma are common among the general population and shared by 40% of health staff. Poor knowledge of the disease and its treatment, low trust in modern treatment, restricted access to AED and ignorance of long-term treatment explain the low access to AED. Improving understanding of epilepsy and its treatment, will improve the treatment gap for epileptic children in the Lao PDR.
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