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The place of pediatric rheumatology in India
Sujata Sawhney1, Prudence Manners
1Paediatric Rheumatology Division, Centre for Child health, Sir Ganga Ram Hospital, New Delhi, India 110022. drsujatasawhney@gmail.com
Insights
Pediatric rheumatology in India faces challenges due to limited centers and low awareness, leading to delayed diagnosis and poor outcomes for children with rheumatic diseases.
Area of Science:
- Pediatric Rheumatology
- Public Health
- Healthcare Systems
Background:
- Rheumatology is an emerging pediatric specialty in India with few centers of excellence.
- Limited awareness of childhood rheumatic conditions leads to delayed referrals and suboptimal long-term results.
- Paediatric rheumatology patients require complex care, including acute, chronic, and transition services to adult care.
Purpose of the Study:
- To highlight the complex needs of pediatric rheumatology patients in India.
- To discuss the reasons behind poor awareness and the current disease burden.
- To analyze the healthcare delivery system and propose future strategies.
Main Methods:
- Literature review and analysis of the current state of pediatric rheumatology in India.
- Discussion of disease burden, healthcare delivery challenges, and patient outcomes.
- Exploration of strategies for improved care and transition to adult services.
Main Results:
- Attaining remission in 2010 was seldom achieved for Indian pediatric rheumatologic patients.
- Poor awareness, delayed referrals, and inadequate healthcare systems contribute to poor outcomes.
- Significant burden of disease exists, necessitating better management and transition plans.
Conclusions:
- Addressing the complex needs of pediatric rheumatology patients requires enhanced awareness and specialized care.
- Improving the healthcare delivery system and planning for transition to adult care are crucial.
- Future strategies should focus on early diagnosis, comprehensive management, and seamless transition for better long-term outcomes.
Abstract:
Rheumatology is a relatively new specialty in the field of Pediatrics in India where there are only a few centres of excellence. Awareness about these conditions in childhood is lacking and patients are often referred late resulting in poor long term outcomes. This article highlights the needs of the paediatric rheumatology patients which are complex and should encompass both acute and chronic care and also plan a smooth transition to the adult rheumatology world. In the year 2010, attaining remission is the goal for every child with a rheumatologic disorder, which is seldom achieved for the Indian pediatric rheumatologic patient. The article discusses the reasons for poor awareness, the current outcome for these patients and details the burden of disease in India. The health care delivery system and finally the way forward have been discussed.
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