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Published on: September 27, 2020
Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with CF
Maureen George1, Devin Rand-Giovannetti, Michelle N Eakin
1Family and Community Health Division, Center for Health Equity Research, University of Pennsylvania School of Nursing, Fagin Hall 418 Curie Blvd., Philadelphia, PA 19104-4217, United States.
Background:
Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF.
Methods:
Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes.
Results:
Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%).
Conclusions:
Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.
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