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Travelling with cystic fibrosis: recommendations for patients and care team members

T O Hirche1, J Bradley, D d'Alquen

  • 1Department of Pulmonary Medicine, German Clinic for Diagnostics (DKD), Wiesbaden, Germany.

Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|September 21, 2010
PubMed

Insights

This paper offers practical travel advice for people with cystic fibrosis (CF), emphasizing pre-travel consultations with CF centers for essential preparations and emergency planning.

Area of Science:

  • Medical Guidelines
  • Public Health
  • Patient Care

Background:

  • No existing European guidelines address travel for individuals with cystic fibrosis (CF).
  • Recommendations developed by 30 ECORN-CF project members.
  • Endorsed by the European Cystic Fibrosis Society and sponsored by EU and Christiane Herzog Foundation.

Purpose of the Study:

  • To provide patient-oriented, practical advice for travel planning and execution for individuals with CF.
  • To complement medical guidance with actionable travel suggestions.
  • To address travel considerations for immunocompromised travelers.

Main Methods:

  • Development of recommendations by a panel of 30 experts from the ECORN-CF project.
  • Inclusion of practical advice covering pre-travel, during-travel, and destination-specific considerations.
  • Focus on patient-centered information.

Main Results:

  • Key recommendations include pre-travel consultation with CF centers.
  • Guidance covers necessary preparations, vaccinations, and essential medications.
  • Information on regional CF care and emergency action plans is provided.

Conclusions:

  • Individuals with CF should consult their CF center before international travel.
  • CF centers can offer vital advice on preparation, medication, and emergency protocols.
  • These recommendations aim to facilitate safer and more manageable travel experiences for people with CF.

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