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07:50
Establishment of a Clinic-based Biorepository
Published on: May 29, 2017
[Memorandum registry for health services research]
D Müller1, M Augustin2, N Banik3
1Institut für Forschung in der Operativen Medizin, Universität Witten-Herdecke.
Gesundheitswesen (Bundesverband Der Arzte Des Offentlichen Gesundheitsdienstes (Germany))
|September 28, 2010
Summary
This guideline offers methods for developing high-quality health services research registries and assessing their quality. It provides criteria and a checklist for developers and users of registry data.
Area of Science:
- Health Services Research
- Registry Methodology
- Data Quality Assessment
Context:
- Registries in health services research exhibit diverse aims, designs, and data collection methods.
- The German Network for Health Services Research (DNVF e. V.) developed this memorandum on registry methods.
Purpose:
- To establish a methodological guideline for developing high-quality health services research registries.
- To offer an instrument for users to assess the overall quality of existing registries.
Summary:
- The paper defines registries and outlines their applications in health services research.
- It details methodological aspects including registry development phases, technical organization, statistical analysis, reporting, data protection, and ethical/legal considerations.
- Criteria for quality assessment and a practical checklist are presented.
Impact:
- Enhances the quality and reliability of health services research registries.
- Facilitates standardized development and evaluation of registries.
- Improves the usability and trustworthiness of registry data for research and policy.
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