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Establishment of a Clinic-based Biorepository
Published on: May 29, 2017
The case for a national patient library
Jeffrey C Lerner1, Daniel M Fox, Sheryl B Ruzek
1ECRI Institute, Plymouth, Pennsylvania, USA.jlerner@ECRI.org
Abstract:
A national patient library that stored and communicated findings from research on the comparative effectiveness of health services could be a valuable resource for patients and clinicians. It could assist in improving the quality of health care and help reduce inappropriate costs. Public confidence in a national patient library would require that its activities be insulated from government as well as from professional, provider, payer, and commercial groups and advocacy organizations. This article describes why such a library is possible and desirable, what it would do for whom, how it could be governed and financed, and how it could overcome initial challenges.
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