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[Family and chronic paediatric illness]
Claudia Grau Rubio1, M Fernández Hawrylak
1Escuela Universitaria de Magisterio Ausias March, Departamento de Didáctica y Organización Escolar, Universidad de Valencia, Valencia, España. claudia.grau@uv.es
Anales Del Sistema Sanitario De Navarra
|October 8, 2010
Summary
Pediatric illnesses significantly impact family dynamics, requiring a holistic approach. This study proposes a family-centered intervention model to support children and their families through healthcare challenges.
Area of Science:
- Family Systems Theory
- Pediatric Psychology
- Healthcare Management
Context:
- Pediatric illnesses present multifaceted challenges for families, affecting structural, procedural, and emotional dynamics.
- Hospitalization and long-term treatment consequences disrupt established family routines and well-being.
- Understanding these alterations is crucial for effective family support.
Purpose:
- To describe the alterations in family dynamics due to pediatric illness.
- To advocate for treating children within their family context.
- To propose a comprehensive, multi-dimensional intervention model for pediatric patient families.
Summary:
- The paper details how pediatric illnesses disrupt family structures, processes, and emotional states.
- It emphasizes the importance of integrating the child's care within the family unit.
- A novel intervention model is presented, focusing on individual family needs, community support, resilience-building, and coordinated, user-centered services.
Impact:
- This family-centered model aims to enhance coping mechanisms and resilience in families facing pediatric health crises.
- It promotes the development of tailored support systems, leveraging environmental resources.
- The proposed service organization seeks to improve care coordination and patient outcomes through community integration.
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