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[Family and chronic paediatric illness]

Claudia Grau Rubio1, M Fernández Hawrylak

  • 1Escuela Universitaria de Magisterio Ausias March, Departamento de Didáctica y Organización Escolar, Universidad de Valencia, Valencia, España. claudia.grau@uv.es

Anales Del Sistema Sanitario De Navarra
|October 8, 2010
PubMed

Insights

Pediatric illnesses significantly impact family dynamics, requiring a holistic approach. This study proposes a family-centered intervention model to support children and their families through healthcare challenges.

Area of Science:

  • Family Systems Theory
  • Pediatric Psychology
  • Healthcare Management

Context:

  • Pediatric illnesses present multifaceted challenges for families, affecting structural, procedural, and emotional dynamics.
  • Hospitalization and long-term treatment consequences disrupt established family routines and well-being.
  • Understanding these alterations is crucial for effective family support.

Purpose:

  • To describe the alterations in family dynamics due to pediatric illness.
  • To advocate for treating children within their family context.
  • To propose a comprehensive, multi-dimensional intervention model for pediatric patient families.

Summary:

  • The paper details how pediatric illnesses disrupt family structures, processes, and emotional states.
  • It emphasizes the importance of integrating the child's care within the family unit.
  • A novel intervention model is presented, focusing on individual family needs, community support, resilience-building, and coordinated, user-centered services.

Impact:

  • This family-centered model aims to enhance coping mechanisms and resilience in families facing pediatric health crises.
  • It promotes the development of tailored support systems, leveraging environmental resources.
  • The proposed service organization seeks to improve care coordination and patient outcomes through community integration.

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