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A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
Published on: July 31, 2017
[Data protection. Barrier or helpful orientation for cooperation in early intervention?]
1Deutsches Institut für Jugendhilfe und Familienrecht (DIJuF) e.V., Postfach 102020, 69010, Heidelberg, Deutschland. schoenecker@dijuf.de
This study outlines a plan for seamless transitions between healthcare and child welfare systems for families needing extra support. It details legal frameworks for data sharing to ensure child safety while maintaining trust.
Area of Science:
- Pediatrics
- Public Health
- Social Work
Background:
- The healthcare system is the primary contact for parents and children up to age 3.
- Essential support services, particularly for at-risk families, are often located within the child welfare system.
- A gap exists in transitioning families between these systems for comprehensive care.
Purpose of the Study:
- To propose a lawful and effective plan for transitioning families between the healthcare and child welfare systems.
- To ensure functional data protection and maintain trust in the doctor-patient relationship.
- To facilitate access to necessary additional help for children and families.
Main Methods:
- Analysis of existing legal frameworks governing data transfer between healthcare and child welfare.
- Examination of conditions under which information can be shared without parental consent in cases of potential child endangerment.
- Review of new federal state laws concerning data transfer for child protection.
Main Results:
- A plan for a lawful and functionally adequate transition between healthcare and child welfare systems is described.
- Functional data protection is crucial for maintaining trust and enabling consensual transitions.
- Legal provisions allow for information transfer without consent under specific circumstances of child endangerment.
Conclusions:
- Implementing a structured transition plan can improve access to essential services for vulnerable families.
- Healthcare professionals must navigate legal requirements for assessing child endangerment and facilitating support.
- New legislation supports data sharing in critical child protection cases, balancing privacy with safety.
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