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Validation of a quality of life questionnaire in the Pacific Island
Patricia M O'Connor1, Bronwyn C Scarr, Ecosse L Lamoureux
1Centre for Eye Research Australia, University of Melbourne, Royal Victorian Eye and Ear Hospital, Australia.
Purpose:
To adapt an existing validated quality of life instrument, the Impact of Vision Impairment (IVI) questionnaire for Pacific Island countries.
Methods:
Following in-depth interviews (n = 24) and a pilot study (n = 67), the original 32-item IVI questionnaire was translated and adapted in Vanuatu. The Melanesian IVI (IVI_M) was administered to participants not previously involved in the pilot study (n = 189).
Results:
Participants included 117 (62%) with mild, moderate or severe vision impairment, 39 with unilateral loss and 33 with normal vision. Eighty-six percent of the original 32-items were deemed relevant by 90% of participants. Items displaying floor effects were removed (4), 2 were combined and 3 items rephrased to reflect Melanesian-specific activities, resulting in a 23-item IVI_M. Nineteen items were relevant to both the Melanesian and Australian contexts including all 8 items related to the emotional reaction to vision loss. IVI_M demonstrated content and construct validity, reliability and discriminated visually healthy populations from those with vision impairment. Vision impairment of < 6/18 negatively effected quality of life.
Conclusion:
While the adaptation process demonstrated the need for culturally relevant instruments, it also highlighted the value of adapting existing validated instrument for use in cross-cultural research rather than developing a new instrument from first principles.
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