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Aviva Gaskill1, Frederick W Foley, Julie Kolzet

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Suicidal ideation in multiple sclerosis (MS) patients is strongly linked to a perceived loss of control. Understanding these themes is crucial for supporting MS individuals experiencing such thoughts.

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Area of Science:

  • Neurology
  • Psychiatry
  • Qualitative Health Research

Background:

  • Suicidal ideation (SI) is more prevalent in multiple sclerosis (MS) patients compared to the general population.
  • For some individuals with MS, SI may represent a coping mechanism to exert control over an unpredictable disease.
  • The psychological burden of MS necessitates understanding the specific themes associated with SI in this population.

Purpose of the Study:

  • To identify specific mental constructs and perceptual themes experienced by MS patients with suicidal ideation.
  • To investigate the role of 'control' as a central theme in the context of SI among individuals with MS.

Main Methods:

  • Qualitative analysis of individual interviews with 16 MS patients reporting SI.
  • Interviews were audiotaped, transcribed, and analyzed by two independent raters to identify key themes.

Main Results:

  • Eight key themes emerged: perceived loss of control, family tension, loneliness, hopelessness, frustration, physical/psychological impact of MS, altered gender roles, regaining control, and role functioning issues.
  • A model was developed to explain how these themes contribute to SI in MS patients.
  • All participants identified a perceived loss of control as a trigger for suicidal thoughts.

Conclusions:

  • A perceived loss of control is a significant disease-related burden contributing to suicidal ideation in patients with multiple sclerosis.
  • Addressing the theme of control may be a critical component in interventions for SI in MS.
  • Further research into the psychological impact of MS and its relation to SI is warranted.