The ethical community consultation model as preparation for nursing research: a case study

Area of Science:

• Oncology
• Qualitative Research
• Community Engagement

Background:

• Mastectomy significantly impacts body image and self-perception.
• Research on post-mastectomy body image requires sensitive and ethical approaches.
• Community input is valuable in shaping relevant and ethical health research.

Purpose of the Study:

• To describe the use of community consultation in preparing a research project.
• To explore the ethical considerations and practicalities of researching self-perception after mastectomy.
• To gather insights from stakeholders on study design and participant protection.

Main Methods:

• A descriptive qualitative design was employed.
• Community consultation utilized various interactive modalities over three months.
• Data analysis focused on ethical goals, potential benefits, risks, and participant protection.

Main Results:

• Community consultation provided valuable pre-research planning information.
• Stakeholder input enhanced the ethical framework and legitimacy of the proposed study.
• Recommendations for participant protection were developed through dialogue.

Conclusions:

• Community consultation is an effective tool for researchers designing studies, particularly in sensitive areas like post-mastectomy body image.
• Engaging stakeholders ensures research is ethically sound, relevant, and considers participant well-being.
• This approach can strengthen the foundation and acceptance of health research projects.