Related Experiment Video
Updated: Jun 6, 2026

Continuous Manual Exchange Transfusion for Patients with Sickle Cell Disease: An Efficient Method to Avoid Iron Overload
Published on: March 14, 2017
Problematic hospital experiences among adult patients with sickle cell disease
Lakshmi Lattimer1, Carlton Haywood, Sophie Lanzkron
1Osler Medical Training Program, Johns Hopkins Hospital.
Background:
Adults with sickle cell disease (SCD) have often reported difficulties obtaining care during vaso-occlusive crisis (VOC) in qualitative studies.
Methods:
We measured the experiences of 45 SCD patients who received in-hospital care for VOC using the Picker Patient Experience Questionnaire (PPE-15), and used the one sample binomial test to compare with national norms.
Results:
Most SCD patients reported that they were insufficiently involved in decisions (86%), staff gave conflicting information (64%), it wasn't easy to find someone to discuss concerns (61%), doctors' answers to questions were not clear (58%), nurses' answers to questions were not clear (56%), doctors did not always discuss fears and anxieties (53%), and nurses did not always discuss fears and anxieties (52%). A greater percentage of SCD patients than the U.S. sample in 9 of 12 areas reported problems.
Conclusions:
Further research is needed to determine the consequences of and potential interventions to improve these poor experiences.
Related Concept Videos
Hemodialysis II: Procedure and Complications
Ethical Issues
Ethical Concerns in Healthcare:
Peritoneal Dialysis II: Peritoneal Dialysis Systems and Complications
Chronic Kidney Disease II: Clinical Manifestations
Peritoneal Dialysis III: Nursing Management
Sputum Studies II: Culture and Sensitivity
Sputum culture and sensitivity is a medical procedure used to diagnose bacterial infections in the respiratory tract and select the most appropriate antibiotics for treatment. This process involves analyzing sputum samples of thick and opaque secretions produced in the lungs and airways. These samples are collected from patients and then sent to the laboratory for analysis.
The test can identify various pathogens responsible for respiratory infections, including Streptococcus,...
