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Adult congenital heart care in a pediatric setting--a patient's perspective

Martha A Tomlin1, Kathy Gosney

  • 1Adolescent & Adult Congenital Heart Program, The Heart Institute, Cincinnati Children’s Hospital Medical Center, 3333 Burnet Ave, MLC 2003, Cincinnati, OH 45229, USA. Martha.tomlin@cchmc.org

The Journal of Cardiovascular Nursing
|November 26, 2010
PubMed

Insights

Adults with congenital heart disease (CHD) are satisfied with care in pediatric settings. Most patients with CHD reported no concerns and would recommend the clinic.

Area of Science:

  • Cardiology
  • Adult Congenital Heart Disease
  • Patient Care

Background:

  • Congenital heart disease (CHD) affects 1% of live births, with over 1 million adults now living with the condition.
  • Improved medical interventions allow 85% of infants with CHD to reach adulthood, necessitating specialized ongoing care.
  • Adult care providers often lack knowledge of complex CHD, highlighting the need for specialized clinics.

Purpose of the Study:

  • To determine the perspective of adults with congenital heart disease (CHD) receiving follow-up care in a pediatric setting.

Main Methods:

  • A pilot, anonymous 11-question patient satisfaction survey was administered.
  • The survey targeted patients attending an adult congenital heart disease clinic at a pediatric hospital over a 2-year period.

Main Results:

  • 96% of respondents expressed no concerns about receiving adult congenital heart care in a pediatric setting.
  • 98% of patients indicated they would recommend the clinic to other individuals with CHD.

Conclusions:

  • Patient satisfaction indicates that a pediatric setting is acceptable for adult congenital heart disease care.
  • Knowledge of complex congenital heart lesions and potential complications is paramount for adult CHD patients.
  • The location of the clinic (pediatric vs. adult setting) had minimal impact on patient perspective.
Abstract

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