Does race influence age of diagnosis for children with developmental delay?
Joshua R Mann1, Sarah Crawford, Lesly Wilson
1University of South Carolina, School of Medicine, Department of Family and Preventive Medicine, Columbia, SC 29208, USA. joshua.mann@sc.edu
Insights
Racial disparities in diagnosing developmental delay (DD) were examined. While African American children were diagnosed slightly younger, overall diagnosis ages were late for all children, indicating a need for earlier identification for early intervention services.
Area of Science:
- Pediatric Health
- Developmental Pediatrics
- Health Disparities Research
Background:
- Early identification of developmental delay (DD) is crucial for timely intervention.
- Existing racial disparities in childhood conditions raise concerns about equitable diagnosis ages for DD.
- This study investigates potential racial disparities in the age of developmental delay diagnosis.
Purpose of the Study:
- To determine the mean age of diagnosis for developmental delay in children covered by South Carolina Medicaid.
- To test the hypothesis that African American children are diagnosed later than white children.
- To identify racial disparities in the age of developmental delay diagnosis.
Main Methods:
- Retrospective cohort study utilizing South Carolina Medicaid claims data.
- Analysis of diagnostic ages for 5358 children diagnosed with developmental delay.
- Examination of racial differences in the age of first developmental delay diagnosis.
Main Results:
- Mean age at diagnosis was 4.08 years for African American children and 4.27 years for white children.
- Children with DD and mental retardation were diagnosed at an average of 2.6 years.
- Children with DD and cerebral palsy were diagnosed at an average of 2.1 years.
- African American race was associated with younger DD diagnosis in multivariable analysis, though the model had low explanatory power.
Conclusions:
- No clinically significant racial differences were found in the mean age of developmental delay diagnosis.
- The overall age of diagnosis for developmental delay was unacceptably late for both racial groups.
- Enhanced efforts are required to ensure earlier identification of children with developmental delay in South Carolina for early intervention.
Background:
Early identification of developmental delay is important for ensuring that children receive the early intervention services they need. Racial disparities exist for a number of childhood conditions, but it is not known whether there are racial disparities in the age of diagnosis with developmental delay.
Objective/Hypothesis:
This study aimed to determine the mean age of diagnosis with developmental delay for children ensured by South Carolina Medicaid. We hypothesized that African American children would be diagnosed later than white children.
Methods:
A retrospective cohort study design explored South Carolina Medicaid claim records to determine the age when 5358 children with developmental delay (DD) were first diagnosed and whether there were racial disparities in age of diagnosis.
Results:
The mean age at diagnosis was 4.08 years for African American children and 4.27 years for white children. For children diagnosed with DD and mental retardation, the average age of first diagnosis was 2.6 years, and for children with DD plus cerebral palsy, the average age was 2.1 years. African American race was significantly associated with younger diagnosis with DD in a multivariable model, but the overall model explained little of the variation in age at diagnosis.
Conclusions:
There were no clinically significant racial differences in the mean age of diagnosis with developmental delay. However, in general the age of diagnosis was undesirably late for both groups. Additional efforts are needed to ensure that children with DD, living in South Carolina, are identified near the beginning of early intervention services.
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