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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Reflections on the debate on disability and aid in dying
1Oregon Institute on Disability and Development, Oregon Health and Science University, Portland, Oregon 97201, USA. Gfk2@cdc.gov
Background:
A policy resolution supporting physician aid in dying was proposed to the American Public Health Association (APHA) in 2007 that prompted a debate with the Disability Section on its meaning for people with disabilities.
Objective:
The present paper reflects on the issues revealed and lessons learned.
Methods:
The debate included subcommittee discussion; review of research, polls, administrative reports; discussion with disability rights organizations; and floor-debate and vote by the APHA Governing Council.
Results:
Reflections on the process are summarized under the themes: we all have our own views; it's highly personal; confusion among key concepts; I might want it for myself; it's about control and not about pain; the slippery slope and other arguments; and undue burden on people with disabilities.
Conclusions:
The APHA resolution supporting aid in dying was passed in 2008 with some improvements in the language and a recommendation to measure pre-existing disability. Valuable lessons were learned through the debate process.
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