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Measuring Frailty in HIV-infected Individuals. Identification of Frail Patients is the First Step to Amelioration and Reversal of Frailty
Published on: July 24, 2013
Psychosocial issues in children and adolescents with HIV infection evaluated with a World Health Organization
Antonietta Giannattasio1, Annunziata Officioso, Grazia Isabella Continisio
1Department of Pediatrics, University Federico II, Naples, Italy.
Insights
Psychosocial issues significantly impact the quality of life for children with HIV, even when clinically stable. The International Classification of Functioning, Disability and Health (ICF) effectively evaluates these health and social factors.
Area of Science:
- Pediatric HIV/AIDS research
- Public health and social determinants of health
- Rehabilitation sciences
Background:
- Children with HIV on antiretroviral therapy are often clinically stable.
- Psychosocial factors significantly affect their quality of life.
- The International Classification of Functioning, Disability and Health (ICF) framework offers a comprehensive model for assessing health and disability.
Purpose of the Study:
- To evaluate the efficacy of the ICF in describing the health status and needs of children and adolescents with HIV.
- To assess the impact of environmental and psychosocial factors on the well-being of this population.
- To explore the utility of the ICF in a European pediatric AIDS reference center cohort.
Main Methods:
- Quantitative analysis of structured interviews with caregivers of children and adolescents with HIV.
- Inclusion of participants from two reference centers for pediatric AIDS.
- Investigation of four key ICF domains: body structures/functions, environmental factors, and activity/social participation limitations.
Main Results:
- Body structures and functions showed minimal impairment.
- Environmental factors (poverty, unemployment, single-parent households) and psychosocial issues profoundly impacted quality of life.
- Fear of social stigma created significant barriers to disclosing HIV status, leading to activity and social restrictions.
Conclusions:
- Psychosocial well-being is integral to the overall health of children with HIV.
- The ICF serves as a valuable standardized tool for assessing clinical and psychosocial status in pediatric HIV.
- The ICF can effectively measure the impact of interventions on psychosocial functioning in children and adolescents with HIV.
Objectives:
After active antiretroviral therapy, children with HIV are clinically well, whereas psychosocial issues continue to influence their quality of life. The International Classification of Functioning, Disability and Health (ICF) of the World Health Organization evaluates health status and environmental and social factors associated with health. We investigated the efficacy of the ICF to describe the health status and needs of a cohort of children and adolescents with HIV seen at a reference center for pediatric AIDS in Europe.
Methods:
A quantitative analysis of structured interviews was performed. Caregivers of children and adolescents with HIV infection in follow-up at 2 reference centers for pediatric AIDS were enrolled. Four major areas included in the ICF instrument were investigated: impairments of body structures; impairments of body functions; environmental factors; and activity limitations and restrictions to social life.
Results:
Forty-one families of children with HIV were enrolled. Body structures and functions were marginally impaired, whereas environmental factors and psychosocial issues had a relevant impact on quality of life. Most families considered environmental factors to be "barriers"; these were poverty, unemployment, and single-parent family structure. Activity limitations and social restrictions were also reported in a few cases. Almost all parents reported problems in disclosing their child's HIV status because of the fear of social stigma.
Conclusion:
Psychosocial issues are part of the well-being of children with HIV. The ICF is a standard tool to evaluate the clinical and psychosocial status of children and adolescents with HIV infection and to measure the impact of therapeutic interventions and strategies on psychosocial functioning.
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