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Perceptions about hospice from a community-based pilot study: lessons and findings.

Daniel Van Dussen¹, Krystal L Culler, John G Cagle

¹Department of Sociology, Anthropology, and Gerontology, Youngstown State University, OH 44555, USA. djvandussen@ysu.edu

The American Journal of Hospice & Palliative Care

|January 7, 2011

Summary

Many older adults lack knowledge about hospice care coverage despite recognizing its importance. This study highlights a need for better public education on end-of-life care options and insurance benefits.

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Area of Science:

Gerontology
Palliative Care
Public Health

Background:

Expanding hospice service utilization requires understanding diverse older adults' knowledge and attitudes toward end-of-life care.
Previous research indicates a gap in awareness regarding hospice care among various demographics.

Purpose of the Study:

To explore perceptions and awareness of hospice care among older adults in an urban community.
To identify knowledge gaps regarding hospice coverage and associated costs.

Main Methods:

A pilot study surveyed 148 adults aged 43 and older through local churches in an urban area.
Data collection focused on awareness of hospice services, insurance coverage (Medicare, Medicaid, private), and perceived costs.

Main Results:

Findings revealed a significant lack of knowledge about whether hospice care is covered by Medicare, Medicaid, or private insurance.
Perceptions of hospice expense were not linked to awareness of insurance coverage.
Despite knowledge gaps, participants generally viewed hospice as important and would recommend it.

Conclusions:

There is a critical need for improved public education on hospice care and its financial aspects.
Targeted outreach through community குறிப்பாக religious organizations can engage older adults in discussions about end-of-life care.
Addressing misconceptions about hospice coverage is essential for increasing service utilization among older populations.